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Operationalizing Symptom Distress in Adults With Cancer: A Literature Synthesis

Teresa T. Goodell
Lillian M. Nail
ONF 2005, 32(2), E42-E47 DOI: 10.1188/05.ONF.E42-E47

Purpose/Objectives: To address inconsistencies in the definition and operationalization of symptom distress by synthesizing the literature on cancer-related symptom distress in adults.

References 

Armstrong, T.S. (2003). Symptoms experience: A concept analysis. <i>Oncology Nursing Forum, 30</i>, 601-606.

Cleeland, C.S., Mendoza, T.R., Wang, X.S., Chou, C., Harle, M.T., Morrissey, M., et al. (2000). Assessing symptom distress in cancer patients: The M.D. Anderson Symptom Inventory. <i>Cancer, 89</i>, 1634-1646.

Cooley, M.E., Short, T.H., & Moriarty, H.J. (2002). Patterns of symptom distress in adults receiving treatment for lung cancer. <i>Journal of Palliative Care, 18</i>, 150-159.

Cooper, H.M. (1998). Synthesizing research: A guide for literature reviews (3rd ed.). Thousand Oaks, CA: Sage.

Desbiens, N.A., Mueller-Rizner, N., Connors, A.F., Wenger, N.S., & Lynn, J. (1999). The symptom burden of seriously ill hospitalized patients. SUPPORT Investigators. Study to understand prognoses and preferences for outcome and risks of treatment. <i>Journal of Pain and Symptom Management, 17</i>, 248-255.

Desbiens, N.A., & Wu, A.W. (2000). Pain and suffering in seriously ill hospitalized patients. <i>Journal of the American Geriatrics Society, 48</i>(5, Suppl.), S183-S186.

Dodd, M., Janson, S., Facione, N., Faucett, J., Froelicher, E.S., Humphreys, J., et al. (2001). Advancing the science of symptom management. <i>Journal of Advanced Nursing, 33</i>, 668-676.

Dodd, M.J., Miaskowski, C., & Paul, S.M. (2001). Symptom clusters and their effect on the functional status of patients with cancer. <i>Oncology Nursing Forum, 28</i>, 465-470.

Dutcher, J.P., Logan, T., Gordon, M., Sosman, J., Weiss, G., Margolin, K., et al. (2000). Phase II trial of interleukin 2, interferon alpha, and 5-fluorouracil in metastatic renal cell cancer: A cytokine working group study. <i>Clinical Cancer Research, 6</i>, 3442-3450.

Ingham, J., Seidman, A., Yao, T.J., Lepore, J., & Portenoy, R. (1996). An exploratory study of frequent pain measurement in a cancer clinical trial. <i>Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care, and Rehabilitation, 5</i>, 503-507.

Johnson, J.E. (1973). Effects of accurate expectations about sensations on the sensory and distress components of pain. <i>Journal of Personality and Social Psychology, 27</i>, 261-275.

Johnson, J.E., & Rice, V.H. (1974). Sensory and distress components of pain: Implications for the study of clinical pain. <i>Nursing Research, 23</i>, 203-209.

Knobf, M.T. (2001). The menopausal symptom experience in young mid-life women with breast cancer. <i>Cancer Nursing, 24</i>, 201-210.

Kuo, T.T., & Ma, F.C. (2002). Symptom distresses and coping strategies in patients with non-small cell lung cancer. <i>Cancer Nursing, 25</i>, 309-317.

Kutner, J.S., Kassner, C.T., & Nowels, D.E. (2001). Symptom burden at the end of life: Hospice providers' perceptions. <i>Journal of Pain and Symptom Management, 21</i>, 473-480.

Lenz, E.R., Pugh, L.C., Milligan, R.A., Gift, A., & Suppe, F. (1997). The middle-range theory of unpleasant symptoms: An update. <i>Advances in Nursing Science, 19</i>(3), 14-27.

Lenz, E.R., Suppe, F., Gift, A.G., Pugh, L.C., & Milligan, R.A. (1995). Collaborative development of middle-range nursing theories: Toward a theory of unpleasant symptoms. <i>Advances in Nursing Science, 17</i>(3), 1-13.

McClement, S.E., Woodgate, R.L., & Degner, L. (1997). Symptom distress in adult patients with cancer. <i>Cancer Nursing, 20</i>, 236-243.

McCorkle, R. (1987). The measurement of symptom distress. <i>Seminars in Oncology Nursing, 3</i>, 248-256.

McCorkle, R., Strumpf, N.E., Nuamah, I.F., Adler, D.C., Cooley, M.E., Jepson, C., et al. (2000). A specialized home care intervention improves survival among older post-surgical cancer patients. <i>Journal of the American Geriatrics Society, 48</i>, 1707-1713.

McCorkle, R., & Young, K. (1978). Development of a symptom distress scale. <i>Cancer Nursing, 1</i>, 373-378.

Mercadante, S., Casuccio, A., Fulfaro, F., Groff, L., Boffi, R., Villari, P., et al. (2001). Switching from morphine to methadone to improve analgesia and tolerability in cancer patients: A prospective study. <i>Journal of Clinical Oncology, 19</i>, 2898-2904.

Merriam-Webster, Incorporated. (2005). Merriam-Webster online. Retrieved January 20, 2005, from <a target="_blank" href='http://www.m-w.com'>http://www.m-w.com</a>

Nail, L.M. (1993). Coping with intracavitary radiation treatment for gynecologic cancer. <i>Cancer Practice, 1</i>, 218-224.

National Comprehensive Cancer Network. (2004). Clinical practice guidelines: Distress management. Retrieved January 19, 2005, from <a target="_blank" href='http://www.nccn.org/professionals/physician_gls/PDF/distress.pdf'>http:/...

National Institutes of Health. (2002). <i>State-of-the science statement: Symptom management in cancer: Pain, depression, and fatigue.</i> Retrieved September 2, 2004, from <a target="_blank" href='http://consensus.nih.gov/ta/022/022_statement.htm#1'>http://consensus.ni...

Nesbitt, B.J., & Heidrich, S.M. (2000). Sense of coherence and illness appraisal in older women's quality of life. <i>Research in Nursing and Health, 23</i>, 25-34.

Portenoy, R.K., Thaler, H.T., Kornblith, A.B., Lepore, J.M., Friedlander-Klar, H., Kiyasu, E., et al. (1994). The Memorial Symptom Assessment Scale: An instrument for the evaluation of symptom prevalence, characteristics and distress. <i>European Journal of Cancer, 30A</i>, 1326-1336.

Rhodes, V.A., McDaniel, R.W., Homan, S.S., Johnson, M., & Madsen, R. (2000). An instrument to measure symptom experience. Symptom occurrence and symptom distress. <i>Cancer Nursing, 23</i>, 49-54.

Rhodes, V.A., & Watson, P.M. (1987). Symptom distress—The concept: Past and present. <i>Seminars in Oncology Nursing, 3</i>, 242-247.

Robert, F., Soong, S.J., & Wheeler, R.H. (1997). A phase II study of topotecan in patients with recurrent head and neck cancer. Identification of an active new agent. <i>American Journal of Clinical Oncology, 20</i>, 298-302.

Samarel, N., Fawcett, J., & Tulman, L. (1993). The effects of coaching in breast cancer support groups: A pilot study. <i>Oncology Nursing Forum, 20</i>, 795-798.

Samarel, N., Leddy, S.K., Greco, K., Cooley, M.E., Torres, S.C., Tulman, L., et al. (1996). Development and testing of the symptom experience scale. <i>Journal of Pain and Symptom Management, 12</i>, 221-228.

Teel, C.S., Meek, P., McNamara, A.M., & Watson, L. (1997). Perspectives unifying symptom interpretation. <i>Image—The Journal of Nursing Scholarship, 29</i>, 175-181.

Tishelman, C., Degner, L.F., & Mueller, B. (2000). Measuring symptom distress in patients with lung cancer. A pilot study of experienced intensity and importance of symptoms. <i>Cancer Nursing, 23</i>, 82-90.

Tishelman, C., Taube, A., & Sachs, L. (1991). Self-reported symptom distress in cancer patients: Reflections of disease, illness or sickness? <i>Social Science and Medicine, 33</i>, 1229-1240.

Woodgate, R.L., Degner, L.F., & Yanofsky, R. (2003). A different perspective to approaching cancer symptoms in children. <i>Journal of Pain and Symptom Management, 26</i>, 800-817.