Harding, R., Higginson, I.J., Leam, C., Donaldson, N., Pearce, A., George, R., . . . Taylor, L. (2004). Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. Journal of Pain and Symptom Management, 27(5), 396–408.

DOI Link

Study Purpose

A short-term, closed, multiprofessional group aimed to promote self-care by combining informal teaching with group support.

Intervention Characteristics/Basic Study Process

A single group facilitator introduced multiprofessional input from a changing weekly speaker during six, 90-minute weekly sessions. Groups were capped at 12 caregivers.

The group initially focused on patient issues, and transportation for caregivers and a patient-sitting service were provided when necessary.

A total of four groups were delivered with peer supervision to ensure consistency of the intervention.

Sample Characteristics

  • N = 73 adult, informal, unpaid caregivers of patients receiving palliative care (86% of patients had a diagnosis of cancer)

Setting

  • Home palliative care services in London, United Kingdom

Study Design

The study design was a prospective, observational, comparative (no randomization) between those who accepted the intervention (n = 36) and those who declined the intervention but agreed to data collection in the first wave (n = 37); limitations existed in group assignment.

Measurement Instruments/Methods

  • Zarit burden inventory
  • Palliative outcome scale
  • Eastern Cooperative Oncology Group performance scale
  • Coping responses inventory
  • General health questionnaire-12
  • State anxiety scale

Results

The intervention was not found to affect outcomes for any measures at post-intervention (eight weeks) or follow-up (five months).

Limitations

  • The study had no randomization.
  • Participants had a choice of comparison group.
  • Little information was given about the training or preparation of the group facilitator.
  • The sample was mostly Caucasian.
  • Attrition was a problem.