References
Abernethy, A. P., Currow, D. C., Fazekas, B. S., Luszcz, M. A., Wheeler, J. L., & Kuchibhatla, M. (2008). Specialized palliative care services are associated with improved short- and long-term caregiver outcomes. Supportive Care in Cancer, 16, 585-597.
Ansell, P., Howell, D., Garry, A., Kite, S., Munro, J., Roman, E., & Howard, M. (2007). What determines referral of UK patients with haematological malignancies to palliative care services? An exploratory study using hospital records. Palliative Medicine, 21, 487-492. doi:10.1177/0269216307082020
Auret, K., Bulsara, C., & Joske, D. (2003). Australasian haematologist referral patterns to palliative care: Lack of consensus on when and why. Internal Medicine Journal, 33, 566-571. doi:10.1111/j.1445-5994.2003.00490.x
Australasian Bone Marrow Transplant Recipient Registry. (2010). Annual data summary. Darlinghurst, New South Wales, Australia: Author.
Barrett, A. J., & Battiwalla, M. (2010). Relapse after allogeneic stem cell transplantation. Expert Review of Hematology, 3, 429-451.
Boyce, A., McHugh, M., & Lyon, P. (2003). Proactive palliative care choices for haematology day unit patients. International Journal of Palliative Nursing, 9, 544-550.
Center for International Blood and Marrow Transplant Research. (2011). Current uses and outcomes of hematopoietic stem cell transplantation 2011: Summary slides worldwide. Milwaukee, WI: Center for International Blood and Marrow Transplant Research.
Chow, K., & Coyle, N. (2011). Providing palliative care to family caregivers throughout the bone marrow transplantation trajectory. Journal of Hospice and Palliative Care Nursing, 13(1), 7-13.
Chung, H. M., Lyckholm, L. J., & Smith, T. (2009). Palliative care in BMT. Bone Marrow Transplantation, 43, 265-273.
Cooke, L., Gemmill, R., & Grant, M. (2011). Creating palliative education sessions for hematopoietic stem cell transplantation recipients at relapse. Clinical Journal of Oncology Nursing, 15, 411-417. doi:10.1188/11.CJON.411-417
Dalgaard, K., Thorsell, G., & Delmar, C. (2010). Identifying transitions in terminal illness trajectories: A critical factor in hospital-based palliative care. International Journal of Palliative Nursing, 16, 87-92.
Denham, S., & Looman, W. (2010). Families with chronic illness. In J. Kaakinen, V. Gedaly-Duff, S. Hanson, & D. Coehlo (Eds.), Family health care nursing (pp. 235-273). Philadelphia, PA: F. A. Davis.
DeSpelder, L., & Strickland, A. (2009). The last dance: Encountering death and dying (8th ed.). New York, NY: McGraw Hill.
Ellis, C. (2004). The ethnographic I: A methodological novel about autoethnography. Walnut Creek, CA: Alta Mira Creek.
Fife, B., Monahan, P., Abonour, R., Wood, L., & Stump, T. (2009). Adaptation of family caregivers during the acute phase of adult BMT. Bone Marrow Transplantation, 43, 959-966. doi:10.1038/bmt.2008.405
Griffith, K. (1999). Holism in the care of the allogeneic bone marrow transplant population: Role of the nurse practitioner. Holistic Nursing Practice, 13(2), 20-28.
Harmon-Hanson, S., & Rowe-Kaakinen, J. (2005). Theoretical foundations for nursing of families. In S. Harmon-Hanson, V. Gedaly-Duff, & J. Rowe-Kaakinen (Eds.), Family health care nursing: Theory, practice and research (pp. 69-97). Philadelphia, PA: F. A. Davis.
Holloway, I., & Wheeler, S. (2010). Qualitative research in nursing and healthcare (3rd ed.). Oxford, United Kingdom: Blackwell.
Howell, D., Shellens, R., Roman, E., Garry, A., Patmore, R., & Howard, M. (2010). Hematological malignancy: Are patients appropriately referred for specialist palliative and hospice care? A systematic review and meta-analysis of published data. Palliative Medicine, 25, 630-641. doi:10.1177/0269216310391692
Jeffrey, D. (1995). Appropriate palliative care: When does it begin? European Journal of Cancer Care, 4, 122-126.
Kasberg, H., Brister, L., & Barnard, B. (2011). Aggressive disease, aggressive treatment: The adult hematopoietic stem cell transplant patient in the intensive care unit. Journal of Advanced Critical Care, 22, 349-346. doi:10.1097/NCI.0b013e318232c690
Kelly, D., Ross, S., Gray, B., & Smith, P. (2000). Death, dying and emotional labour: Problematic dimensions of the bone marrow transplant nursing role? Journal of Advanced Nursing, 32, 952-960.
Kelly, M., Crotty, G., Perera, K., & Dowling, M. (2010). Evaluation of bone marrow examinations performed by an advanced nurse practitioner: An extended role within a haematology service. European Journal of Oncology Nursing, 10(1), 1-4.
Knopf, K. (2011). Core competencies for bone marrow transplant nurse practitioners. Clinical Journal of Oncology Nursing, 15, 102-105. doi:10.1188/11.CJON.102-105
Lindeke, L., Fagerlund, K., Avery, M., & Zwygart-Stauffacher, M. (2010). Overview of advanced practice nursing. In M. Jansen & M. Zwygar-Stauffacher (Eds.), Advanced practice nursing (4th ed., pp. 3-30). New York, NY: Springer.
Lister, E. (2001). Liza's death: A personal reflection. Journal of Pain and Symptom Management, 21, 243-249.
Maddocks, I., Bentley, L., & Sheedy, J. (1994). Quality of life issues in patients dying form hematological diseases. Annals of the Academy of Medicine, 2, 244-248.
Maziarz, R., & Slater, S. (2011). Post-transplant relapse. In R. Maziarz & S. Slater (Eds.), Blood and marrow transplant handbook (pp. 271-276). New York, NY: Springer Science.
McDonnell, T., & Morris, M. (1997). An exploratory study of palliative care in bone marrow transplant patients. International Journal of Palliative Nursing, 3, 111-117.
McGrath, P. (2001a). Caregivers' insights on the dying trjectory in hematology oncology. Cancer Nursing, 24, 413-421.
McGrath, P. (2001b). Dying in the curative system: The hematology oncology dilemma: Part 1. Australian Journal of Holistic Nursing, 8, 22-30.
McGrath, P. (2002). Dying in the curative system: The hematology oncology dilemma: Part 2. Australian Journal of Holistic Nursing, 9, 14-21.
McGrath, P., & Holewa, H. (2007). Description of an Australian model for end-of-life care in patients with a hematological malignancy. Oncology Nursing Forum, 34, 79-86. doi:10.1188/07.ONF.79-85
Middlewood, S., Gardner, G., & Gardner, A. (2001). Dying in a hospital: Medical failure or natural outcome? Journal of Pain and Symptom Management, 22, 1035-1041.
Mielcarek, M., Storer, B., Flowers, M., Storb, R., Sandmaier, B., & Martin, P. (2007). Outcomes among patients with recurrent high-risk hematological malignancies after allogeneic haematopoietic cell transplantation. Biology of Blood and Marrow Transplantation, 13, 1160-1168. doi:10.1016/j.bbmt.2007.06.007
Molloy, P., Virani, R., Kelly, K., & Munevar, C. (2010). Beyond bad news: Communication skills of nurses in palliative care. Journal of Hospice and Palliative Nursing, 12, 166-175. doi:10.1097/NJH.0b013e3181d99fee
National Health and Medical Research Council. (2005). Clinical practice guidlines for the diagnosis and management of lymphoma. Sydney, Australia: The Cancer Council Australia/Australian Cancer Network.
National Institute for Clinical Excellence. (2003). Improving outcomes in hematological cancers: The manual. London, United Kingdom: Author.
Pavletic, S., Kumar, S., Moty, M., de Lima, M., Foran, J., Pasquini, M., … Weisdorf, D. (2010). NCI first international workshop on the biology, prevention and treatment of relapse after allogeneic hematopoietic stem cell transplantation: Report from the Committee on the Epidemiology and Natural History of Relapse Following Allogeneic Cell Transplantation. Biology of Blood and Marrow Transplantation, 16, 871-890. doi:10.1016/j.bbmt.2010.04.004
Saunders, C. (1978). The management of terminal malignant disease. London, United Kingdom: Edward Arnold.
Schober, M., & Affara, F. (2006). Advanced practice nursing. Oxford, United Kingdom: Blackwell.
Smith, M., & Guthrie, A. (2011). Palliative care. In R. Maziarz & S. Slater (Eds.), Blood and marrow transplant handbook (pp. 277-281). New York, NY: Springer Science.
Stalfelt, A., Brodin, H., Pettersson, S., & Eklof, A. (2003). The final phase of acute myeloid leukemia (AML): A study on bleeding, infection and pain. Leukemia Research, 27, 481-488. doi:10.1016/S0145-2126(02)00262-X
Stockelberg, D., Lehtola, P., & Norén, I. (1997). Palliative treatment at home for patients with haematological malignancy. Supportive Care in Cancer, 5, 506-508.
Temel, J. S., Greer, J. A., Muzikansky, A., Gallagher, E. R., Admane, S., Jackson, V. A., … Lynch, T. J. (2010). Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine, 363, 733-742. doi:10.1056/NEJMoa1000678
Temel, J. S., Jackson, V. A., Billings, J. A., Dahlin, C., Block, S. D., Buss, M. K., … Lynch, T. J. (2007). Phase II study: Integrated palliative care in newly diagnosed advanced non-small-cell cancer patients. Journal of Clinical Oncology, 25, 2377-2382. doi:10.1200/JCO.2006.09.2627
Thomas, K., & Lobo, B. (2011). Advanced care planning. Oxford, United Kingdom: Oxford University Press.
Wingard, J. (2007). Bone marrow to blood stem cell: Past, present, future. In S. Ezzone & K. Schmit-Pokorny, Blood and marrow stem cell transplantation: Principles, practice and nursing insight (3rd ed., pp. 1-29). Sudbury, MA: Jones and Bartlett.
World Health Organization. (2002). National cancer control programmes: Policies and managerial guidelines. Geneva, Austria: Author.
Yoon, S., Conway, J., & McMillan, M. (2006). An exploration of the concept of patient education: implication for the development of education programmes for relapsed post-bone marrow transplantation patients and their families in Korea. International Journal of Nursing Practice, 12, 129-135.